Thanks to Lindsay for providing this link ....
It has very useful information for families of children with genetic deletions.
www.vcfsef.org/articles/en/pdf/Factsheet
Saturday, January 31, 2009
Wednesday, January 14, 2009
Sunday, January 11, 2009
Monday, January 5, 2009
Another day without Gammie's "Beans"
Today is the 37th day without you in my arms...I miss you more with each hour that passes.
~I don't know how to let you go, you're so deep down in my soul, it's a door that will never close...~
~Losing your way on the journey is unfortunate, but losing your reason for the journey is a fate more cruel.~ You made the journey worthwhile and now I don't know what to do.
I can feel your presence so strong, but cannot hold you in my arms.
I love you Elijah Call,
Hug Grandpa for me.
Love always,
Grammie
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