NEW ! Social Network

We are not moving ...Just trying to expand to help get the word out. Any suggestions would be helpful... Feel free to join in , comment, or chat :)

http://elijahslegacy.ning.com/

More helpful chromosomal websites

Always taking more steps towards knowledge....

I recently found and researched these three websites and found them to be quite helpful.

www.chromodisorder.org/CDO/

www.family-friendly-fun.com/chromosomal-abnormalities.htm

www.savebabies.org/expecting/faq.html

Whatever you're looking for , we will try to help you find it. Just ask.

Prayers for Mommy

Pray for my Mommy

She is the strongest person I know

I miss her and I know she misses me too

Sometimes she can't tell I'm with her

It's still hard for me to do

When I whisper in her ear

Or leave my smell in the room

I watch her cry herself

To sleep each night

And beg God to

Make it right

She is so lost without me

And struggles all the way

The pain of losing me

Gets fresher everyday

So please pray for my Mommy

It's hard to watch her cry

I love you Mommy

LOVE,

Your lil' man

~ My love for you is a journey, starting at forever and ending at never ~

Missing You today and always...

Lost without your precious smile

Lost without snuggling you

Lost without you in our arms

Lost five months without you

Missing you today and always

Love and misses

From us all

Help make National DiGeorge Awarness Day a reality

One year anniversary of your lifesaving surgery 4-14-08/ 4-14-09

One year ago today, we were in Boston praying for your safety during surgery.
You were such a trooper!

We are so proud of you today and always...

Today, as we still mourn the loss of you, we have not forgotten all you went through to stay with us just a while longer.

Love you always,

Mommy,Daddy,Grammie, PawPaw, and Aunt Jo-Jo

Easter from Elijah

These are my footprints

so perfect and so small

These tiny footprints

never touched the ground at all

Not one tiny footprint

For now I have my wings

These tiny footprints

were meant for greater things

You will hear my tiny footprints

in the patter of the rain

Gentle drops like angel's tears

of joy and not of pain

You will see my tiny footprints in

each butterflies lazy dance

I'll let you know I'm with you

if you give me a chance

You will see my tiny footprints

in the rustle of the leaves

I'll whisper names into the wind

and call each one that grieves

Most of all these tiny footprints

are found in all your hearts

'cause even though I'm gone

We'll never truly part

Love always,

Elijah Call

Pediatric Endocrinologists in the Southern States

Today, four months have passed since losing Elijah Call...
We are still unable to make sense of the lack of knowledge on the part the medical profession.

I've been doing alot of research lately.

I am including a list of pediatric endocrinologist. I don't have web addresses yet, but will post when I get them. For now, I am providing addresses and phone numbers.

MISSISSIPPI
UNIVERSITY MEDICAL CENTER, JACKSON,MS.
(DR. George Moll)- toll free: 1-888-815-2005 & 1-601-376-1545

CENTRAL PD EAST
1860 Chadwick Dr.
Suite 206
Jackson,Ms. 39204 (Dr. William Bastian)

ALABAMA
PEDS ENDOCRINOLOGY - CHILDREN'S HOSPITAL ( 205-939-9100)
Birmingham , Alabama
Drs. Hussein D Abdul-LaTif, Amy Burton, Kenneth L. McCormick, Elaine Mooreland,
Ambika P. Ashraf , Joycelyn Atchison, Whitney Brown and Gail Mick

MOBILE
USA PEDIATRIC DISEASE
Dr. Samar Bhowmick and Dr. Kenneth Rettie

GEORGIA
EMORY CHILDREN'S CENTER
ATLANTA , GEORGIA
Drs. Inger Hansen and Eric Felner

PEDIATRIC ENDOCRINE ASSOCIATES
ATLANTA, GEORGIA
DRs. Mark Rappaport, Stephen Anderson, and Melissa Carlucci


NENOURS CHILDREN'S CLINIC
PENSACOLA, FLORIDA 32504
DRs. Helen Hsiang, Mark Kummer, and Michele Zerah

May you all be blessed on your journey ...

Elijah with his Mommy and Daddy

Elijah Call, Mommy & Daddy on his 1st birthday:10-18-08

Elijah Call and Mommy - 3days old Elijah Call and Daddy -3 days old

Elijah Caldwell Marsh 4-days old



New year's day 08' Elijah & Daddy

Elijah & Daddy

(official ring bearer's at Uncle Jacob's wedding)

Elijah had already wet his suit by the time these pics were taken.

Elijah Call , Daddy & Mommy at UncleJacob's wedding to Aunt Aubree 10-10-08

In my many efforts to share Elijah's legacy, I have realized that I have left out a VERY important part of his blog...His Daddy!

Sorry Chris!

I no more meant to leave his daddy 'out of the picture' , than I thought to take my next breath.

Elijah is very fortunate to have had two wondeful parents who love him more than anything.

Without Chris, I would never have had the life changing, love that Elijah gave so willingly to all of us.

For my "Beans"

"Before you , my life was like a moonless night. Very dark, but there were stars- points of light and reason.... And then you shot across my life like a meteor. Suddenly everything was on fire; there was brilliancy , there was beauty. When you were gone, when the meteor had fallen over the horizon, everything went black. Nothing had changed , but my eyes were blinded by the light. I couldn't see the stars anymore. And there was no more reason for anything."

QUOTE FROM: NEW MOON

Beans,

We see the reasons now for you in our lives. You brought the sun into focus and your sun will ALWAYS shine in our lives.

Everything has changed because of you and you have given us reason...

Love,

Grammie & Paw-Paw

NEW INFORMATION

As I am ever searching for more information , I spend hours reading articles and cross researching to find the ones that I think would be helpful.
These are some that I have recently read and wish I'd been able to find a year ago. I hope they are helpful to someone.

Forever searching for Elijah's Legacy...


New links: http://www.cardiogenetics.org/del22q11_guide_layout.asp (VCFS)
http://www.uptodate.com/patients (Evaluation, diagnosis & management of DiGeorge-22q11)
http://www.jkms.org/fulltext/pdf/jkms-17-125.pdf (Prenatal diagnosis of tetrology of fallot)