Baby Beans, It was a blue Christmas without you. All the sparkle and glowing lights could not replace the thoughts of needing you here with us. We miss you so. All our love to you today and always, Mommy,Daddy,Paw-paw ,Grammie & Aunt Jo-Jo
I have 3 beautiful children. Janet-24, Jacob-21 & Jordyn -16 .
I am the grammie of Elijah or, "Beans".He was a victim of a rare genetic disorder called DiGeorge syndrome. He was born 10-18-07 , weighing in at 3# 11oz, passed away on 11-29-08 weighing in at 10# 3 oz. Elijah's story must be told because this syndrome was unheard of by us and everyone we know, before Elijah. We lacked information and were on a roller coaster of survival for 13 mos. & 11 days all filled with LOVE,JOY and FEAR....
I am on a mission to create a foundation for DiGeORGE Syndrome patients and families.