More useful information

Thanks to Lindsay for providing this link ....

It has very useful information for families of children with genetic deletions.

www.vcfsef.org/articles/en/pdf/Factsheet

Elijah's legacy: Medical Needs

Elijah's legacy: Medical Needs

Medical Needs

Medical Needs

National Primary Immunodeficiency Resource Center

National Primary Immunodeficiency Resource Center

FISH Test@Everything2.com

Elijah's legacy: Always more to learn about DiGeorge/22Q DELETION

Elijah's legacy: Always more to learn about DiGeorge/22Q DELETION

Another day without Gammie's "Beans"

Today is the 37th day without you in my arms...I miss you more with each hour that passes.
~I don't know how to let you go, you're so deep down in my soul, it's a door that will never close...~
~Losing your way on the journey is unfortunate, but losing your reason for the journey is a fate more cruel.~ You made the journey worthwhile and now I don't know what to do.
I can feel your presence so strong, but cannot hold you in my arms.
I love you Elijah Call,
Hug Grandpa for me.
Love always,
Grammie

Elijah's legacy

Elijah's legacy

~...don't miss out on a blessing because it isn't packaged the way you expected it to be ... ~