Symptoms of DiGeorge syndrome - WrongDiagnosis.com#symptom_list#symptom_list
Verona-Juventus
1 year ago
Subscribe to:
Post Comments (Atom)
My Blog List
-
-
God's Plan In The Seasons Of Our Lives7 years ago
-
Happy NEW YEAR!!13 years ago
-
Praying for Baby Joseph!13 years ago
-
Fall Time14 years ago
-
-
About Me
- grammie
- I have 3 beautiful children. Janet-24, Jacob-21 & Jordyn -16 . I am the grammie of Elijah or, "Beans".He was a victim of a rare genetic disorder called DiGeorge syndrome. He was born 10-18-07 , weighing in at 3# 11oz, passed away on 11-29-08 weighing in at 10# 3 oz. Elijah's story must be told because this syndrome was unheard of by us and everyone we know, before Elijah. We lacked information and were on a roller coaster of survival for 13 mos. & 11 days all filled with LOVE,JOY and FEAR.... I am on a mission to create a foundation for DiGeORGE Syndrome patients and families.
No comments:
Post a Comment