I saw your post on my daughter, Faith's, blog and I had to see Elijah. He is such a beautiful boy and I am so very sorry for your loss. For all it is worth, you are doing a wonderful thing raising awareness of Digeorge (my daughter has it as well). I am glad you can carry out his legacy in such a positive way. Shelly Duarte
I have 3 beautiful children. Janet-24, Jacob-21 & Jordyn -16 .
I am the grammie of Elijah or, "Beans".He was a victim of a rare genetic disorder called DiGeorge syndrome. He was born 10-18-07 , weighing in at 3# 11oz, passed away on 11-29-08 weighing in at 10# 3 oz. Elijah's story must be told because this syndrome was unheard of by us and everyone we know, before Elijah. We lacked information and were on a roller coaster of survival for 13 mos. & 11 days all filled with LOVE,JOY and FEAR....
I am on a mission to create a foundation for DiGeORGE Syndrome patients and families.
I saw your post on my daughter, Faith's, blog and I had to see Elijah. He is such a beautiful boy and I am so very sorry for your loss. For all it is worth, you are doing a wonderful thing raising awareness of Digeorge (my daughter has it as well). I am glad you can carry out his legacy in such a positive way. Shelly Duarte
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