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It's been 10 months today, Beans, but no~one has forgotten...
You are 23 months old now and still the center of our universe. Running the streets of gold and playing around . All of the things you couldn't do here. I'm sure you're playing frisbee with that Halo of yours!
I'm using this gorgeous picture of you and Uncle Jacob, to thank you for the gift you are sending our way. A new little cousin should be here in May! We are all so excited and torn just the same... We know you hand picked him or her to help heal the pain. You'll NEVER be forgotten or far from our minds. We know you decided it was just the right time. Thank you sweet ANGEL, for thinking of us and always watching out for those in your trust.
We love you forever and ever again. Don't worry your spot can NEVER be taken.
Grammie misses you more than sunshine and always will...
im so glad i found. i was diagnosed 8 years ago with this when we had my daughter who is 8. Im one of the oldest adults with this syndrome im 42 and live in missouri. god bless you for this blog. is there any support group for us
ReplyDeleteBryan, There is support for us! I am so glad you visisted us here. In the archives of this blog there are many places listed and to the left there are the 'blogs I follow' that ALL connect to DGS. Also, we have another site that was created to build a foundation for DGS families
ReplyDeletehttp://www.elijahslegacy.ning.com
It is filled with information about finding doctors and support. Please join us there and add anything you wish.
May God always bless you and your family on your journey.
I'm here if I can help.
Sincerely,
Grammie