Sunday, March 29, 2009

Pediatric Endocrinologists in the Southern States

Today, four months have passed since losing Elijah Call...
We are still unable to make sense of the lack of knowledge on the part the medical profession.

I've been doing alot of research lately.

I am including a list of pediatric endocrinologist. I don't have web addresses yet, but will post when I get them. For now, I am providing addresses and phone numbers.

MISSISSIPPI
UNIVERSITY MEDICAL CENTER, JACKSON,MS.
(DR. George Moll)- toll free: 1-888-815-2005 & 1-601-376-1545

CENTRAL PD EAST
1860 Chadwick Dr.
Suite 206
Jackson,Ms. 39204 (Dr. William Bastian)

ALABAMA
PEDS ENDOCRINOLOGY - CHILDREN'S HOSPITAL ( 205-939-9100)
Birmingham , Alabama
Drs. Hussein D Abdul-LaTif, Amy Burton, Kenneth L. McCormick, Elaine Mooreland,
Ambika P. Ashraf , Joycelyn Atchison, Whitney Brown and Gail Mick

MOBILE
USA PEDIATRIC DISEASE
Dr. Samar Bhowmick and Dr. Kenneth Rettie

GEORGIA
EMORY CHILDREN'S CENTER
ATLANTA , GEORGIA
Drs. Inger Hansen and Eric Felner

PEDIATRIC ENDOCRINE ASSOCIATES
ATLANTA, GEORGIA
DRs. Mark Rappaport, Stephen Anderson, and Melissa Carlucci


NENOURS CHILDREN'S CLINIC
PENSACOLA, FLORIDA 32504
DRs. Helen Hsiang, Mark Kummer, and Michele Zerah

May you all be blessed on your journey ...

Wednesday, March 11, 2009

Elijah with his Mommy and Daddy

Elijah Call, Mommy & Daddy on his 1st birthday:10-18-08


Elijah Call and Mommy - 3days old Elijah Call and Daddy -3 days old











Elijah Caldwell Marsh 4-days old



New year's day 08' Elijah & Daddy

Elijah & Daddy

(official ring bearer's at Uncle Jacob's wedding)

Elijah had already wet his suit by the time these pics were taken.



Elijah Call , Daddy & Mommy at UncleJacob's wedding to Aunt Aubree 10-10-08


In my many efforts to share Elijah's legacy, I have realized that I have left out a VERY important part of his blog...His Daddy!
Sorry Chris!

I no more meant to leave his daddy 'out of the picture' , than I thought to take my next breath.

Elijah is very fortunate to have had two wondeful parents who love him more than anything.

Without Chris, I would never have had the life changing, love that Elijah gave so willingly to all of us.






Wednesday, March 4, 2009

For my "Beans"












"Before you , my life was like a moonless night. Very dark, but there were stars- points of light and reason.... And then you shot across my life like a meteor. Suddenly everything was on fire; there was brilliancy , there was beauty. When you were gone, when the meteor had fallen over the horizon, everything went black. Nothing had changed , but my eyes were blinded by the light. I couldn't see the stars anymore. And there was no more reason for anything."




QUOTE FROM: NEW MOON




Beans,


We see the reasons now for you in our lives. You brought the sun into focus and your sun will ALWAYS shine in our lives.
Everything has changed because of you and you have given us reason...



Love,


Grammie & Paw-Paw




Sunday, March 1, 2009

NEW INFORMATION

As I am ever searching for more information , I spend hours reading articles and cross researching to find the ones that I think would be helpful.
These are some that I have recently read and wish I'd been able to find a year ago. I hope they are helpful to someone.

Forever searching for Elijah's Legacy...


New links: http://www.cardiogenetics.org/del22q11_guide_layout.asp (VCFS)
http://www.uptodate.com/patients (Evaluation, diagnosis & management of DiGeorge-22q11)
http://www.jkms.org/fulltext/pdf/jkms-17-125.pdf (Prenatal diagnosis of tetrology of fallot)

Saturday, February 28, 2009

THREE MONTHS WITHOUT YOU NOW...








Three months without your beautiful smile...
Grammie and Paw-Paw miss you so much , Angel.
Hugs and Kisses



Wednesday, February 25, 2009

~Life is too long without you~



~ I wonder how long this can last. Maybe years from now- if the pain would just decrease to the point where I could bear it- I would be able to look back on those few short months that would always be the best of my life. And, if it were possible if the pain would ever soften enough to allow me to do that, I was sure that I would feel grateful for as much time as he had given me. More than I'd deserved. Maybe someday I'd be able to see it that way.~
FROM: NEW MOON

This paragraph from an exquisite trilogy(Twilight)sums up my misery in losing "Beans".
It's coming on 3 months now, that seems like an eternity. But also, feels so raw, that it could have only been a second ago....
I love you "Beans"

Saturday, February 14, 2009

New link for grieving families

Griefhaven has been a great source for conversing with other grieving families for me .

https://www.griefhaven.org

Thursday, February 12, 2009

Happy Valentine's Beans...




How am I ?


Speaking for all of us
The world hasn't stopped turning because we are hurting...
Life goes on all around us as ours feels as though it has come to a halt.
Sometimes people don't realize that asking how you're doing just opens the floodgates.
I want to scream and say I'm not alright and I won't be alright, but I know that will make me sound like a lunatic. But , it's how I feel most days. The days pass slowly and the nights slower , when you've lost a child. You go to sleep hoping it's all a nightmare and wake up wishing it was , only to go through the same day over and over. The constant thoughts of what should have been and what could have been are consuming. Always wanting to snuggle him , watch him sleeping, hear him laughing,watch him enjoy a cookie and thinking of what he would sound like if he could talk...wishing things were different .
To be able to change things for my daughter, his mommy. To have words that would make things better like mom's are supposed to be able to do. I don't have the right words , there are no right words. I don't have the answers, somebody , please , tell me what the answers are!
Wishing the doctor would have given more thought to Elijah than to whatever could have been on his mind that day.
Rage, pain and grief... nothing can change it now.
I MISS ELIJAH CALL

Tuesday, February 10, 2009

Elijah Call and Uncle Jacob



One of the best pictures as said by all...
Today has been so hard , Angel, we miss you more than sunshine.
We will not give up searching for your answers.
You are permanently engraved in our hearts, eyes and minds...
Love you more each moment,
FOREVER YOURS
GRAMMIE